Characteristics of Persons Living With HIV Who Have Informal Caregivers in the cART Age of the Epidemic

Rebecca Schnall, Sabina Hirshfield, Jianfang Liu, Karolynn Siegel, Melissa Gradilla

Research output: Contribution to journalArticlepeer-review

6 Citations (Scopus)

Abstract

People living with HIV (PLWH) are aging and many suffer with multimorbidities, making caregiving a relevant and important area of study. The purpose of our study was to understand the occurrence and role of informal caregivers in the current stage of the HIV epidemic. We conducted a Web-based survey with 1,373 PLWH to assess: how many had an informal, unpaid caregiver; the type of relationship with the informal caregiver; and the number of hours the caregiver provided support each day. Among respondents, 333 had an informal caregiver. Blacks, those with low income, individuals who ever had an AIDS diagnosis, those with basic cellphone service, and those living with other comorbid conditions were significantly more likely to have an informal caregiver. Given the demographic profile of those PLWH who were most likely to have caregivers, further study is needed to understand the needs of both caregivers and care recipients.

Original languageEnglish
Pages (from-to)152-162
Number of pages11
JournalJournal of the Association of Nurses in AIDS Care
Volume29
Issue number2
DOIs
Publication statusPublished - Mar 2018

Bibliographical note

Publisher Copyright:
© 2017 Association of Nurses in AIDS Care

Funding

Research reported in this publication was supported by the National Institute of Nursing Research of the National Institutes of Health (award number R01NR015737; PI: Rebecca Schnall). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

FundersFunder number
National Institutes of Health
National Institute of Nursing ResearchR01NR015737

    ASJC Scopus Subject Areas

    • Advanced and Specialised Nursing

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