Detalles del proyecto
Description
GINA JAE, then a student at Columbia University, New York, New York, was awarded a grant in October 2012 to aid research on 'Translating Experiments to Experience: Producing Transplant Practices for Sickle Cell Disease in the US and France,' supervised by Dr. Lesley Sharp. This study examines how healthcare centers are making a risky, expensive, and potentially curative procedure available to children affected by sickle cell disease, a disabling genetic disorder common to minority and immigrant populations in the United States and France. This multi-sited study employs regional and transnational comparative ethnography to elucidate how clinical practices are being produced across four hospital-based centers that provide specialized medical care for children with sickle cell disease in New York and Paris. Sickle cell disease provides a unique lens to compare how divergent standards of care are emerging through the co-production of technological innovation, clinical knowledge, medical authority, ethnicized discourses, and state-level health policies for a disease whose knowledge production has uniquely intertwined with racial, ethnic, and class-based politics and history. Implications of this work include relocating secular scientific priorities toward innovation as not merely the embodiment of positivist objectives to improve health outcomes, but also the means for practitioners to advance professional interests and perform medical authority and expertise. Using the extended case method, this research seeks to refine ongoing theories of biosociality in contemporary risk-based societies and fundamental cause theory in health inequalities.
Estado | Activo |
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Fecha de inicio/Fecha fin | 10/17/12 → … |
Financiación
- Wenner-Gren Foundation: $20,000.00
Keywords
- Transplantes
Huella digital
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